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Real members of myT1Dteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s One Thing You Wish People Better Understood About Living With Type 1 Diabetes?

A myT1Dteam Member asked a question 💭
San Francisco, CA
February 9, 2024
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A myT1Dteam Member

That having a cgm a🤦‍♀️nd an insulin pump is not a "cure" and doesn't make everything "alright". 🤦‍♀️

March 16, 2024
A myT1Dteam Member

I just wish they could understand that everything affects your sugar, not just food. I mean hormones, stress, sleep or lack of sleep, weather, the neighbors dogs breakfast, Aunt Flow. Literally anything for nothing for any reason.

February 29, 2024
A myT1Dteam Member

That having type 1 consumes your mental capacity. When you can eat, when you can't eat, what you eat, do you have to eat a snack even when not hungry. Bringing all the stuff along with you in case you need it. Oh my goodness the cost. I was having lower abdominal pain and it was concerning for appendix. My first thought was darn my cgm that I just put on will have to be removed to go into CT or mri. Luckily I think it was just a virus and I am carrying on. Then my second thought was (I am a nurse) my hospital treats everyone like a type 2 and does not really address type 1 correctly. So yea the constant thoughts related to this diagnosis.

February 28, 2024
A myT1Dteam Member

It is hard socially because eating on a schedule is necessary and if you are not diabetic you don’t get how important it is. Trying to snack to eat later to accommodate friends is a real stressful struggle. Not a Diva, but sometimes perceived as one. That mental strain is lonely.

March 12, 2024
A myT1Dteam Member

Type 1 DIABETES isn't a Choice.. it's Not going away with exercise... it's INEVITABLE 😔... Everyday a person with Type 1 diabetes is just trying to live for tomoro, cause without insulin we would die... And the cost of supplies and medications every month 🤦🏼‍♂️ ain't no way, A insulin pump!!! Crazy crazy crazy Shoutout all my FRIEND-A-BETICS ☝🏼 #ROLLERCOASTERLIFESTYLE

March 3, 2024

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