What's A Common Misconception About Type 1 Diabetes?
The diabetic police can be very hurtful. Ive dealt with it for 59 years. Its gotten better but some people are just so oblivious to our struggles that trying to educate them is useless. Hang in there.
All of the above and more!
Someone actually told me that I "stopped living" when I was diagnosed and placed on a pump. That I "spend too much time and energy" and stay "too focused" trying to manage my diabetes.
Someone else said " So now you're on a pump so everything is OK right?" As if a pump was my cure.
People assume with a pump and CGM that I am healed and they wonder why Im still haveling constant problems! They don't realise nor accept that t1d is different every day and is not predictable.
- Diabetes is not actually caused by too much sugar and/or poor diet
- [Many] diabetics actually can have *some* sugar
- Not sure whether or not I'm only speaking for myself with this one, but when asked how we're feeling, sometimes we legitimately DO NOT KNOW. If our glucose levels are off, often we don't know why. It's not that we aren't taking care of ourselves.
- Related: Just because we seem "fine" does not mean we are.
I was diagnosed at age 5 and am now 57 so I’ve lived most of my life with type 1. I agree, there should be a distinct name to differentiate from type 2 as we all know they are two very different diseases. When the diabetic police people speak out I take the opportunity to educate them because they think they know the right info but typically they don’t. It’s been a long road but I feel that I am finally getting most people to understand the difference. Knowledge is power and now I have the support instead of the criticism from those who have taken the time to learn something new. People want to know but sometimes they are afraid to ask. I remember when the only indicator to your level was peeing on a stick and guessing according to what color it turned. And as one member also mentioned, it was typically referred to as juvenile diabetes, not type 1. There was no long and short acting insulin, just short acting before every meal. And CGM’s weren’t even a thought, nor were blood glucose machines. Technology has come so far and we are all better off for the advancements so stay positive folks. We are way better off than the folks 60 years ago.
That eating too much sugar causes it. I've had people tell me that I ate too much sugar and that's why I got T1D. Pointing out that I was diagnosed at the age of 2 years prompted the response, "Thn your mother fed you too much sugar!"
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